Programme
08:45-09:10
Reception
09:10-09:20
President's address
Dr. Adrian Tookman & Emma Kinloch
Clinical Director for Marie Curie UK and Medical Director at Eaton Hall, London/Chair Designate of the National Cancer Research Institute Consumer Forum
Chair: Prof. Dr. Andrew Krentz
Andrew is a senior physician and clinical researcher with more than three decades of experience in academic medicine, translational medical science and medical education focused on diabetes and related metabolic disorders.
09:20-09:40
Simon Lord
Former cancer patient, personal trainer and health activist
Patient heal thyself: how can you improve your treatment?
09:40-10:00
How R&D can be shaped by listening to patients with chronic pain conditions
Lars Joensson
Vice President, Head Patient Engagement, Innovation Unit Pain, Grünenthal GmbH
10:00-10:20
Hacking your health: how will technology empower patients?
Grace Ogden
Campaigns and Public Affairs Officer, The Royal College of General Practitioners
10:20-10:40
The community healthcare conundrum, who cares?
Dr. Robina Shah
Chartered Consultant Psychologist, Honorary Fellow of the Royal College of General Practitioners and High Sheriff of Manchester
10:40-11:00
Morning break
Chair: Dr. Tessa Richards
Tessa is a senior editor at the BMJ and developed and led the BMJs patient partnership strategy from 2013 -2018.She trained and worked as a general physician, rheumatologist and a general practitioner before joining The BMJ. She lives with stage IV cancer and pernicious anaemia, and is a carer for close family members.
11:00-11:30
The changing face of palliative care
Dr. Adrian Tookman
Clinical Director for Marie Curie UK and Medical Director at Eaton Hall, London
12:00-12:30
Patient nutrition: you are what you eat
Dr. Carolina Rojido & Nigel Penny
Doctor and medical writer specialising in oncology and nutrition/Head of Health and Life Sciences at CU Coventry and Director of the British Association for Nutrition and Lifestyle Medicine (BANT).
12:00-12:30
The challenges of a rare diagnosis
Emma Kinloch
Chair of the National Cancer Research Institute Consumer Forum, UK
12:30-13:30
Lunch
Chair: Emma Kinloch
Emma is the newly appointed Consumer Lead of the National Cancer Research Institute (NCRI). She is currently studying for a PhD in Occupational Health Psychology, focusing on head and neck cancer. Emma is currently collaborating with the Christie Hospital in Manchester to promote research into rare salivary gland cancers.
13:30-14:00
VOICE: improving patient involvement in research
Graham Armitage
Co-founder of VOICE and Operations Director of the National Innovation Centre for Ageing
14:00-14:30
Saving lives & improving treatment - why sharing patient data is good
Chris Carrigan & John Marsh
Expert data adviser/Patient advocate, useMYdata.org
14:30-15:00
How can we work with patients, for patients? An industry perspective
Simon Page
Global Publications and Communications Manager for Neurosciences, Ipsen
15:00-15:30
Sex and disability - still a taboo in healthcare?
Rachel Jury
Founder of rocking2stomas
15:30-16:00
Afternoon break
Chair: Dr. Adrian Tookman
Adrian was one of the 'first wave specialists' of palliative medicine after it was officially recognised in 1985. Since then, Adrian continues to lead the hospice at Belsize Park and holds a national role as Clinical Director of Marie Curie. He is also the Lead Field Editor for the pain, palliative and supportive care group at the Cochrane systematic review group.
16:00-16:30
Patient mentors: how are they enhancing their own treatment?
Prof. Annie Cushing and Gerry Harris
Professor of Communication Skills and Head of Clinical Communication and Learning Skills Unit/Health Mentor Programme Coordinator, Queen Mary University of London
16:30-17:00
Let’s talk: genuine communication in healthcare
Colleen Shannon, Stephanie Nimmo and Dr. Faye Gishen
Freelance healthcare writer and journalist/writer, journalist, campaigner & blogger/Associate Head at University College London Medical School
17:00-17:15
Enabling patients through art
Tony Pickering
Medical artist
17:15-17:45
The future patient: empowered, informed, a partner in healthcare
Trishna Bharadia
Patient engagement consultant, Ambassador for MS Society UK, ADD International and Sue Ryder, Patron for Huntingdon, Peterborough & Cambridge MS Therapy Centre and ParaDance UK, The People's Strictly for Comic Relief 2015, BBC1
17:45-18:30
Networking, canapes and jazz