Programme

08:45-09:10

Reception

09:10-09:20

President's address

Dr. Adrian Tookman & Emma Kinloch

Clinical Director for Marie Curie UK and Medical Director at Eaton Hall, London/Chair Designate of the National Cancer Research Institute Consumer Forum

Chair: Prof. Dr. Andrew Krentz

Andrew is a senior physician and clinical researcher with more than three decades of experience in academic medicine, translational medical science and medical education focused on diabetes and related metabolic disorders. 

09:20-09:40

Simon Lord

Former cancer patient, personal trainer and health activist

Patient heal thyself: how can you improve your treatment?

09:40-10:00

How R&D can be shaped by listening to patients with chronic pain conditions

Lars Joensson

Vice President, Head Patient Engagement, Innovation Unit Pain, Grünenthal GmbH

10:00-10:20

Hacking your health: how will technology empower patients?

Grace Ogden

Campaigns and Public Affairs Officer, The Royal College of General Practitioners

10:20-10:40

The community healthcare conundrum, who cares?

Dr. Robina Shah

Chartered Consultant Psychologist, Honorary Fellow of the Royal College of General Practitioners and High Sheriff of Manchester 

10:40-11:00

Morning break

Chair: Dr. Tessa Richards

Tessa is a senior editor at the BMJ and developed and led the BMJs patient partnership strategy from 2013 -2018.She trained and worked as a general physician, rheumatologist and a general practitioner before joining The BMJ. She lives with stage IV cancer and pernicious anaemia, and is a carer for close family members.

11:00-11:30

The changing face of palliative care

Dr. Adrian Tookman

Clinical Director for Marie Curie UK and Medical Director at Eaton Hall, London

12:00-12:30

Patient nutrition: you are what you eat

Dr. Carolina Rojido & Nigel Penny

Doctor and medical writer specialising in oncology and nutrition/Head of Health and Life Sciences at CU Coventry and Director of the British Association for Nutrition and Lifestyle Medicine (BANT).

12:00-12:30

The challenges of a rare diagnosis

Emma Kinloch

Chair of the National Cancer Research Institute Consumer Forum, UK

12:30-13:30

Lunch

Chair: Emma Kinloch

Emma is the newly appointed Consumer Lead of the National Cancer Research Institute (NCRI). She is currently studying for a PhD in Occupational Health Psychology, focusing on head and neck cancer. Emma is currently collaborating with the Christie Hospital in Manchester to promote research into rare salivary gland cancers.

13:30-14:00

VOICE: improving patient involvement in research

Graham Armitage 

Co-founder of VOICE and Operations Director of the National Innovation Centre for Ageing

14:00-14:30

Saving lives & improving treatment - why sharing patient data is good

Chris Carrigan & John Marsh

 Expert data adviser/Patient advocate, useMYdata.org

14:30-15:00

How can we work with patients, for patients? An industry perspective 

Simon Page

Global Publications and Communications Manager for Neurosciences, Ipsen

15:00-15:30

Sex and disability - still a taboo in healthcare?

Rachel Jury

Founder of rocking2stomas

15:30-16:00

Afternoon break

Chair: Dr. Adrian Tookman 

Adrian was one of the 'first wave specialists' of palliative medicine after it was officially recognised in 1985. Since then, Adrian continues to lead the hospice at Belsize Park and holds a national role as Clinical Director of Marie Curie. He is also the Lead Field Editor for the pain, palliative and supportive care group at the Cochrane systematic review group.

16:00-16:30

Patient mentors: how are they enhancing their own treatment?

Prof. Annie Cushing and Gerry Harris

Professor of Communication Skills and Head of Clinical Communication and Learning Skills Unit/Health Mentor Programme Coordinator, Queen Mary University of London

16:30-17:00

Let’s talk: genuine communication in healthcare

Colleen Shannon, Stephanie Nimmo and Dr. Faye Gishen

Freelance healthcare writer and journalist/writer, journalist, campaigner & blogger/Associate Head at University College London Medical School

17:00-17:15

Enabling patients through art

Tony Pickering

Medical artist

17:15-17:45

The future patient: empowered, informed, a partner in healthcare

Trishna Bharadia

Patient engagement consultant, Ambassador for MS Society UK, ADD International and Sue Ryder, Patron for Huntingdon, Peterborough & Cambridge MS Therapy Centre and ParaDance UK, The People's Strictly for Comic Relief 2015, BBC1

17:45-18:30

Networking, canapes and jazz

The European Health Innovation Collaborative

London 2019

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